Type 1 Diabetes Insulin Pump Therapy. My Omnipod Story.

I don't have time to have a full blog dedicated to Type 1 Diabetes. This blog is more about things that bring joy to my life. However, sometimes I just need to document things in my life for later review. Also, it feels good to vent through writing. My Diabetes like a lot of other PWD's, kicks my ass day in and day out. Even when its not kicking my ass, it is. If you have read any of my other posts on LBC, you can see that I get involved in all types of shenanigans. I tend to act like a little boy on the weekends with my off road activities. On Saturday nights I occasionally play a little ice hockey. When I was learning about pumps the first thing I knew I needed was something durable. More importantly something waterproof. In fact, after destroying a Dexcom receiver during a water induced rollover on my quad, my need for waterproofing was fortified in concrete. I found the Omnipod to fit my needs quite nicely. The theory of Omnipod is absolutely amazing. Fill it up, clean an area, stick it on, boom! You're done. So in May of this year (About 6 months ago) I got on the Omnipod system. It is very easy to use. I really can't stress enough how really simple and unnoticeable it is. I've worn it everywhere, even on top of tattoos. People think its a nicotine patch, which always makes me laugh because that would be a HELL of a dose of nicotine. Almost immediately though I had an issue. Leakage.

No matter where I put a pod, I get leakage right around the sight glass area where the cannula (needle) goes into the skin. The problem here is obviously that your bolus is now only a percetage of what it should be. Thus making control of Blood Sugar very difficult. It also means that if you follow the directions and dont withdrawl the insulin out of the leaking pod, you go through vials at an incredibly alarming rate. Furthermore, corrections are nearly impossible. Originally I was calling Omnipod and reporting these leaks, I was assured that this is unheard of by every person working there. The notion of a leaking Pod was also shot down by my local representitive. This is when I started to take pictures every time it happened. I have quite a collection at this point. Because I usually only get a day or so out of a pod before it leaks, I run very short on pods. After a while I started to become frustrated and started doing a little reasearch around the web. Aparently I am not the only one who has had this issue. I also got some answers about what I can do. The Omnipod although in theory is a GREAT idea, like most great ideas, there are certain downsides to it. The cannula is a fixed angle and length. This is where the (my) problem lies. Other pumps mainly the tubed variety have many different options for infusion sets. That is, the needles can be longer, have different angles and even different diameters. This is not something that I had even considered before. It seems like a non-issue to someone who doesnt have a leakage problem. For myself and a few others this is a very important thing to know before you decide on a pump, but how could you know? You Can't.

I have decided to try the Animas Ping. I already have a Dexcom, so CGM doesnt matter to me. I like the fact that its waterproof, and people seem to give it great reviews. I called Animas last month about 5 weeks ago to get the ball rolling. I was told by them that because I recieved the Omnipod system 6 months ago I needed to get a letter of medical necessity, so I did. Then I was told that they (Animas) had to get a letter of "PREDETERMINATION" from Horizon Blue. Since that day I have been on the phone with Horizon and Animas about 20 times each. Every single time I get a different answer, none of them what I want to hear. To Horizon, the predetermination department doesnt appear to exist, however Animas swears it does. The reason for predetermination as explained to me, is to make sure that Animas, doesnt get stuck with a decline from my Insurance. What I dont understand lies within the price. My PODS are covered 100% I pay nothing. I had to pay half for the system which was like 500$. With the Ping, the infusion sets as well as the pump itself are only covered 50%. That means I'm responsible for about 2500$ upfront, and the recurring charges for infusion sets. Animas seems to think that because Horizon paid for a pump 6 months ago they wont pay for one now, but look at that price difference. Can they even be considered the same thing? I thought the letter of medical necessity was there for this reason. In the letter my issue with leaking pods is stated clearly. So here I am 5 weeks later waiting for something that may or maynot exist. I have one Pod left. My reorder isnt for a few days and than a week to ship, at that time I will be stuck for 3 more months. My insulin bill (due to waste) is SKY high. I could drive a Masarati for that note.

What I want from this experience is for other people who are thinking about an insulin pump to really understand the differences between them. There are more factors than just a nice touch screen (tslim) or a tubless pump (omnipod). There are different infusion sets. What works for one person may not work for you. Its all very important and none of it is black and white. This disease, its just so grey sometimes and so is the treatment. I have one last comment that has nothing to do with any of this. I dont want to be called a Diabetic anymore. I want to be called Type 1. Nothing more, nothing less. I dont want to be put in a box with people, who quite frankly have a very different disease and experince then me in Type 2. The stigma really kills me. The outsiders think its all the same, and they dont care to understand that its not.

Motorcycle work bench.

Since I've decided to turn my 400a into a true "breakout" project. I (with the help of my father in law) created a motorcycle work bench. Then Adam came over and we positioned the bike on it.

My daily driver / commuter (when not on 2 wheels)

If you've been following the build of the JDM d15b block / z6 head setup, you're probably wondering what came of it. It's runs really well and as soon as it's fully broken in I will install the wild cam and start tuning. For now it's mostly low rpm cruising.

Kx125 clutch cover

This is the clutch cover and water pump that I powdercoated for Phil. 

1980 Cm400a

A while back I purchased a 1980 cm400a. Yet again it is without title. No problem, a few bills later and I have one. I had originally intended to get my wife on a motorcycle. Since this is an automatic I will hopefully get her to try riding. I have pretty big plans for this little guy. It does run after extensive carb rebuilding. The wheels are powdercoated in an off white texture. I'm still in the process of deciding what exact direction I will take this. I did hammer knee dent into the tank. Ill take pics of that later.

Powdercoating Update

This is one of the plastic 55gal drums Adam brought me. This works very well at keeping the dust at a minimum.

I did a few more little items as well as a transmission brace for my dd civic. I found this old rusted out Honda Motorcycle wrench. It came out great. Ill probably keep it on the 550.

My 92 Mustang Notchback (sold)

 I built a ridiculously ill 92 Mustang. Not the type you put down when they break a leg, but of the notch back variety. I sold it a few years ago to a young black man who claimed to be a preacher. He paid me in singles fives and tens. In that order. It was a lot of money to count.

 The entire suspension was done with polyurethane Bushings.

 Shot of the Lakewood Bullet Proof Bell housing and Tremec TKO transmission.

 Had my rear girdle. This was before I powdercoated. Everything was two step paint.

 I welded these control arms myself.

 I made this rear seat delete and intalled all the amps and whatnot.

 I also made this truck neat as hell.

 That MDF was cust and finished by me.

 Vortec Renegade Supercharger.

 Custom electronics box, made out of metal, by yet again me.

 The jegs MAXBOX was only made for a short period of time. It was a super nice upper intake manifold.

Everything on this car, was done by me. In my home garage. The car put down just under 500 horses and was good for an easy 10 second 1/4 mile. It popped the front wheels off the ground at the track with slicks.

This Past Summer (Random Pics that I found)

 The "Whale Back" Trevorton PA.

 

Rest In Peace Molly. You were the best dog ever!

 Sold my very customized (by me) Buell xb9sx

James, Michael, and Myself riding to a Gun & Supply Shop.

 Stopped By Grandpa's Grave. (I tend to do this a few times a year.) Also the grave of my Great Grandparents.

 Freemansburg Hill Climb with the gang. My cousin Mike off the the left looks like an Indian guy with 3 arms.

 My black light ink still glows after 6 years.

On the way back from Orlando to my Parents House near Jacksonville. I found a perfect opportunity to "selfie" in a fucking disgusting truck stop mirror. Is that Lot Lizzard Juice or just Dirty Water residue... we may never know.

Riding 10/20/13

Adam, Danielle (girlfriend), and Phil. Unfortunately I was the photographer so no me in the shots.

Cummins 24v Cerakoted high-flow manifold.

This is Adams Dodge. The old manifold cracked (like they do) so he ordered up a 3 piece ported mani. It's supposed to allow expansion to prevent future cracks. He got it home and immediately wanted to have it coated. A local coater wanted a lot of money for the job. After a breif discussion Adam ordered up a tester of the air dry Cerakote. This started the whole powder-coat/oven debacle. For this project we only needed to gas-out or "out-gas" the unit. We threw it on my grille and monitored the temp via infrared gun. I should mention that before all this Adam picked up a bag of 90grit aluminum oxide media, and after cleaning all the glass bead out of my blast cabinet we had a perfect setup for future coating, whatever that may be. We hanged it and adam sprayed the product. It's been two weeks and the Cerakote is holding up amazing.

Type 1 Diabetes

A while back, I seemingly spiraled out of control. I don't like to mix blogs, but since Lost Boy Creations is a part of me, my personal demons and hurdles may as well be known. I have a very small Blog about my T1D. I rarely get a chance to update it. I am far more interested in LBC. I wrote this passage a long time ago, but its really important to note how distressing, aggravating, and emotional a disease can be. Especially an autoimmune disease.

Check it here: Medicating Me Blog Entry

Powder-Coat Oven (do it myself)

I had Adam (my friend) drop off two 55 gallon drums yesterday. I used one to turn into a powder spray booth. I am now fitting oven heating elements into that old smoker and will insulate the entire thing. This should make for a much better oven with a good amount of usable space. Updates, and Pics to follow...

New RAL color that I got.

This is a river blue and I like it a lot.

New Powder Gun = Great Success

I ordered a new powder gun online. It's the company that used to produce the Craftsman powder gun. It is identical to it. I was trying to coat a magnesium clutch cover with the Harbor Freight powder gun system and it kept curing, well, just wrong.

Here's a before:

With the new gun and the same powder it finished exactly how I wanted it. Very nice: